Sunday, January 8, 2012

No news is good news

That seems to be the case in our life. The only time I have excessive amounts of time has been when Bree is in the hospital. Yup...she is again in the hospital, except this time no one has any idea of what is going on. She presented with stroke like symptoms on Tuesday and we went to PCH...long story short, they were not taking me seriously and we ended up signing out AMA (against medical advice) and going to a different children's hospital.

This hospital (Cardon's) has been great at helping us. Her MRI, CT scan and spinal tap have all come back fine so we have no answers. At her worst she could not hold herself up and would slide to the left. She could barely get out words she used to be able to say with ease. She could not drink without spilling immensely and/or choking. She has slowly improved....

Since being here this morning I have noticed that Bree is doing much better! Her speech is still "off" as in I can't always understand her, but she is speaking in 3 to 4 word sentences again and is conveying her wants and needs. As I am typing she is asking me "why Mama?"...she is very weak and can barely stand, and is not able to walk right now, but we will work on that!

The plan is for her to have some labs drawn during the night when her body temp is down, and then an echo and EKG in the morning. As long as all that is clear she will be going home tomorrow with a referral to an endocrinologist and a neuro-developmental pediatrician.

We have a long road ahead of us with recovering lost speech and strength, but we have been down this road before and we can do it again!

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